It's been a while since we last updated this page. The day after Christmas we moved our stuff (in storage since May) into our new home in Meridian, Idaho, just west of Boise. Every day since then has been spent unpacking while trying to keep Katelyn out of everything.
Last week, Judy had her first ultrasound since the confirmation that our baby daughter has CDH. Everything appeared the same. No miracle yet... We then toured the neo-natal unit where our daughter would stay during her recovery (average of six weeks).
When we told the two doctors we met with that day about Judy's friend's experience with her daughter's diagnosis with CDH and eventual in-utero healing, they both said that they had never heard of such a thing and doubted whether the original diagnosis was correct.
In November 2007, our unborn daughter was found to have a condition called Congenital Diaphragmatic Hernia (CDH), which occurs in 1 out of every 2,500 pregnancies. Basically, our daughter’s diaphragm had a hole in it that had allowed her stomach, liver, and some intestines to pass into the upper regions of her chest cavity. Her chest was too overcrowded to allow her lungs to fully develop. She was given slim odds to survive and worse odds to thrive.
Our daughter, Jillian Olivia, was born in the Spring of 2008. Since her birth, Jill had two surgeries during her first year and has since thrived.
We started this site to chronicle our experiences throughout this journey and to keep our family members and friends up-to-date on Jill's condition. Now we use this site to update others on what's going on in our lives.
1 comment:
I believe God can do ANYTHING. I'm still praying for a miracle. :)
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