In November 2007, our unborn daughter was found to have a condition called Congenital Diaphragmatic Hernia (CDH), which occurs in 1 out of every 2,500 pregnancies. Basically, our daughter’s diaphragm had a hole in it that had allowed her stomach, liver, and some intestines to pass into the upper regions of her chest cavity. Her chest was too overcrowded to allow her lungs to fully develop. She was given slim odds to survive and worse odds to thrive.
Our daughter, Jillian Olivia, was born in the Spring of 2008. Since her birth, Jill had two surgeries during her first year and has since thrived.
We started this site to chronicle our experiences throughout this journey and to keep our family members and friends up-to-date on Jill's condition. Now we use this site to update others on what's going on in our lives.
Sunday, March 30, 2008
Surgery Update
Jill is now completely off her blood pressure medications and the nitric oxide! And her oxygen is right around the 40 range. She is very close to surgery! We are still waiting to hear from the surgeon if the surgery is going to happen tomorrow (Monday) or Tuesday. Please continue to pray. We'll try our best to post an update as soon as we find out more information.
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2 comments:
We'll be praying and spreading the word so that others can pray too!
Love you guys!
Bryan,
We all at WHP have you and your family in our thoughts. We are so pleased to hear that Jill is doing so well. You have another 50 people here praying for you and Jill! I looked at the pictures and my goodness what a healthy looking baby. She is precious! I have a really good feeling about you guys and wish you all the best in this very trying time.
Big hugs to the family!
Karen
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