Well since we have been home, there has been the usual scheduling adjustment and getting use to new medications and how to use the feeding pump and so on…but the one thing that I never thought much about until we returned home was how Jill’s feeding G-tube would also affect what clothes she could wear. So for the last couple of days, I have been going through her clothes and trying to figure out what clothes would still fit her. Mostly I’ve just had to switch her to the next size up to make sure onesies and other clothes aren’t too tight on her.
It is really ridiculous, but the one thing that really makes me sad is that she can’t wear her zip-up pajamas anymore because she is on the feeding drip line at night. I don’t think it would bother me so much if Katelyn didn’t care so much about what pajamas Jill wears. Literally, Katelyn starts planning at breakfast what pajamas they are going to wear that night. It just happens that they both have a lot of zip-up pajamas in similar colors (turquoise, purple, pink, etc.). Last night Katelyn really wanted Jill and her to wear their matching turquoise pajamas. She started crying when I told her that Jill couldn’t fit in her turquoise pajamas anymore. Finally, I found some red button up pair of pajamas for Jill and Katelyn’s red pajamas so they could match. This morning Katelyn told me that tonight she wanted to wear their matching purple pajamas.
The whole pajama thing really shouldn’t be that big of a deal, but when I see how sad it makes Katelyn it upsets me too. I think at some point we might have to look for some matching or coordinating 2-piece pajama sets for the girls (or pajamas with the reverse zipper or snaps for Jill so we can still access her feeding G-tube).
It is really ridiculous, but the one thing that really makes me sad is that she can’t wear her zip-up pajamas anymore because she is on the feeding drip line at night. I don’t think it would bother me so much if Katelyn didn’t care so much about what pajamas Jill wears. Literally, Katelyn starts planning at breakfast what pajamas they are going to wear that night. It just happens that they both have a lot of zip-up pajamas in similar colors (turquoise, purple, pink, etc.). Last night Katelyn really wanted Jill and her to wear their matching turquoise pajamas. She started crying when I told her that Jill couldn’t fit in her turquoise pajamas anymore. Finally, I found some red button up pair of pajamas for Jill and Katelyn’s red pajamas so they could match. This morning Katelyn told me that tonight she wanted to wear their matching purple pajamas.
The whole pajama thing really shouldn’t be that big of a deal, but when I see how sad it makes Katelyn it upsets me too. I think at some point we might have to look for some matching or coordinating 2-piece pajama sets for the girls (or pajamas with the reverse zipper or snaps for Jill so we can still access her feeding G-tube).
3 comments:
could you cut a small hole in the pajamas, so the feeding tube could be accessed?
Michele H.
(friend of Camille)
That's a great idea! Buy cheaper zip-ups at, like, K-Mart, then cut a hole for Jill's tube and satin stitch around the cut so it won't fray. If you don't have a machine, bring 'em to my apartment. My machine's old, but it satin stitches! ;-)
http://www.tummytunnels.com/home.html
I came across your blog as my little guy is scheduled for a g-tube. I found this website when looking into how his clothes will fit. Maybe it will be useful to you (unless you've already found something else)
Wendy
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