Following surgery last Monday night, Jill's surgeon was hoping that she would be off of her ventilator within two weeks. We assumed that she would then have an oxygen tube in her nose for several weeks, maybe even after going home. Well tonight, one week later, Jill is off of the ventilator and is breathing on her own, without an oxygen tube!
Jill's blood will be monitored closely to see if she is getting enough oxygen on her own. If not, she will have an oxygen tube placed in her nose. It is wonderful that she doesn't need the ventilator tube down her throat anymore. It looked very uncomfortable. She still has one tube down her throat that helps empty out her stomach occasionally.
This is another HUGE step to Jill's recovery. The next big step is to get her feeding and digesting breast milk. She will start off with just a couple of drops and work her way up from there. Babies with CDH tend to have reflux issues so this can be a slow process.
We have posted some more photos of Jill (www.flickr.com/photos/3apples). Here is a video of her from Saturday.
In November 2007, our unborn daughter was found to have a condition called Congenital Diaphragmatic Hernia (CDH), which occurs in 1 out of every 2,500 pregnancies. Basically, our daughter’s diaphragm had a hole in it that had allowed her stomach, liver, and some intestines to pass into the upper regions of her chest cavity. Her chest was too overcrowded to allow her lungs to fully develop. She was given slim odds to survive and worse odds to thrive.
Our daughter, Jillian Olivia, was born in the Spring of 2008. Since her birth, Jill had two surgeries during her first year and has since thrived.
We started this site to chronicle our experiences throughout this journey and to keep our family members and friends up-to-date on Jill's condition. Now we use this site to update others on what's going on in our lives.
9 comments:
what a strong little girl! Great news! We continue to pray for her!
love from Santa Cruz
Laura :)
amazing. keep it up, jill!
blessings, apple-bdogs
-dp.
thank God for ALL of the prayers He continues to answer & for how fast baby Jill's recovering. keep shocking those doctor's.
love, shan
Praise God for the continual progress Jill is making. May she continue to grow stronger and healthier. The lord is with you all and he is FAITHFUL!! Were praying for you.
Love Claudia
& The Tates :)
I am so unbelievably happy that my niece is doing so well. I think about her everyday, all of the time. She is such a fighter and such a blessing. I know that you guys have been through so much but hopefully the worst is over and soon you will be able to take your beautiful daughter home.
I will continue to pray for all of you and I can't wait for the opportunity to meet my precious little niece. I know that mom is watching over her as her guardian angel!
Love, Christine (Auntie)
Hey Judy (and the family),
This is Joey Boerner from your NNU days. I heard about Jill from Lane S, and he sent me the link to your blog.
Please know that Holly and I are praying for you guys! She looks beautiful (as does your oldest daughter)!
Prayers from Oregon,
Joey and Holly Boerner
Jillian is my hero.
Mega. Mega. Mega news! We are thrilled to hear it. Now that you are moving to the next step of recovery feel free to call us with any questions on the feeding part of this. This is massive. We are extremely thankful to know that she is doing so well. Bless you guys.
Matt, Carla and Lily
We are so inspired by your faith! Thank you letting us watch little Jill's progress and for sharing your lives through your blog - it has inspired us! We will be praying for Jill and for all of you in this journey.
Love, Ryan & Angie Ketchum
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