In November 2007, our unborn daughter was found to have a condition called Congenital Diaphragmatic Hernia (CDH), which occurs in 1 out of every 2,500 pregnancies. Basically, our daughter’s diaphragm had a hole in it that had allowed her stomach, liver, and some intestines to pass into the upper regions of her chest cavity. Her chest was too overcrowded to allow her lungs to fully develop. She was given slim odds to survive and worse odds to thrive.
Our daughter, Jillian Olivia, was born in the Spring of 2008. Since her birth, Jill had two surgeries during her first year and has since thrived.
We started this site to chronicle our experiences throughout this journey and to keep our family members and friends up-to-date on Jill's condition. Now we use this site to update others on what's going on in our lives.
she is so beautiful & perfect. we're praying for you guys adjusting to having to travel back and forth to the hospital a couple times a day and be there for katelyn too. i remember when leia was born, it was such a big adjustment for kaia to get used to having to share us with a new baby & we didn't even have to leave her to go do it, so we're praying for the transition to be as easy as possible for katelyn during this rough time for her (and you guys). blessings~shannon
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she is so beautiful & perfect. we're praying for you guys adjusting to having to travel back and forth to the hospital a couple times a day and be there for katelyn too. i remember when leia was born, it was such a big adjustment for kaia to get used to having to share us with a new baby & we didn't even have to leave her to go do it, so we're praying for the transition to be as easy as possible for katelyn during this rough time for her (and you guys). blessings~shannon
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