We have posted some more photos of Jill (www.flickr.com/photos/3apples), plus some videos (a new feature for Flickr).
Jill just started feeding a few days ago. She is being started on two teaspoons of Pedialyte. Once she shows she can handle that, she will move on to breast milk. The whole feeding process can be a rollercoaster, as we witnessed yesterday. Jill threw up one of her feedings along with some digested blood. We hear that this can be somewhat normal for babies with CDH. But it's still scary for us. Please pray that this process works itself out. If it doesn't, another surgery may be required.
We'll try to write more later.
In November 2007, our unborn daughter was found to have a condition called Congenital Diaphragmatic Hernia (CDH), which occurs in 1 out of every 2,500 pregnancies. Basically, our daughter’s diaphragm had a hole in it that had allowed her stomach, liver, and some intestines to pass into the upper regions of her chest cavity. Her chest was too overcrowded to allow her lungs to fully develop. She was given slim odds to survive and worse odds to thrive.
Our daughter, Jillian Olivia, was born in the Spring of 2008. Since her birth, Jill had two surgeries during her first year and has since thrived.
We started this site to chronicle our experiences throughout this journey and to keep our family members and friends up-to-date on Jill's condition. Now we use this site to update others on what's going on in our lives.
1 comment:
Praying :)
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