By the lack of posts the past eight days, you can see just how busy we have been. You can say it has been quite stressful for the both of us. Not because of how Jillian is doing (she is doing well), but because of how jam packed our days are. I (Bryan) took one of those on-line stress tests that quiz you on events that have taken place in your life in the past year (e.g. started new job, moved to a different location, had a baby, etc.) and then gives you a score. A score of 150 indicates you have a 50/50 chance of getting an illness due to stress. A score over 300 indicates you have a 90% chance of getting sick. My score was 418…and this test didn’t even ask if I have a temperamental 2-year old or a baby in the NICU.
A typical weekday for me consists of working from 7:30 a.m. to 5:00 p.m. (my workday is pretty crazy right now). I then rush over to the hospital. Judy and I eat a quick dinner in the hospital cafeteria. We then head up to see Jill. I stay until 7:00 p.m. and then head home to watch Katelyn until Judy gets home around 8:30 p.m. (luckily we found a good babysitter from church to help out three nights per week). Then we put Katelyn to bed. Then we quickly get ready for the next day…Repeat sequence.
Jill is doing pretty well. She has increased her feedings steadily since we last wrote. She still isn’t excited about drinking from the bottle. It is probably an aversion to having anything in her mouth after having had a couple of tubes down her throat for 2+ weeks. Whatever she doesn’t drink from the bottle gets inserted directly into her stomach through a tube in her nose. Like most CDH babies, Jill has a problem with reflux.
We have added new photos and videos on our Flickr site (http://www.flickr.com/photos/3apples).
In November 2007, our unborn daughter was found to have a condition called Congenital Diaphragmatic Hernia (CDH), which occurs in 1 out of every 2,500 pregnancies. Basically, our daughter’s diaphragm had a hole in it that had allowed her stomach, liver, and some intestines to pass into the upper regions of her chest cavity. Her chest was too overcrowded to allow her lungs to fully develop. She was given slim odds to survive and worse odds to thrive.
Our daughter, Jillian Olivia, was born in the Spring of 2008. Since her birth, Jill had two surgeries during her first year and has since thrived.
We started this site to chronicle our experiences throughout this journey and to keep our family members and friends up-to-date on Jill's condition. Now we use this site to update others on what's going on in our lives.
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