We will need to figure out the feeding tube pump instructions. There's no time to procrastinate.
Thank you to all of you who have been praying for Jill, Judy, Katelyn, and me. A special thanks to our friend, Virginia, and her young son, Randall, who bumped up their trip from Washington to stay at our house for I think 8-9 days and nights to help take care of Katelyn. Without this stability in Katelyn's life, our lives would have been much more stressful these past two weeks.
We are tentatively planning a road trip to California from March 6th- 15th if all goes well. My step-brother is getting married and we haven't visited since November 2007. Jill's doctor doesn't think it should be a problem. We're praying that the tube feeding thing will be mastered by then and that the roads will be clear.
4 comments:
Hello!
I found your blog and wondered if you had heard of the Oley Foundation yet.
We offer free information and peer support for families like your with a member on home tube or IV feeding. Check out our website at www.oley.org.
In particular you might be interested in the
• Tube Feeding Tips page
http://www.oley.org/tubetalks.html
• Travel Information
http://www.oley.org/traveltips.html
• Meet Patients Section (try all three links)
http://www.oley.org/volunteers.html
http://www.oley.org/call.html
http://www.oley.org/forum.htm
• Oley's annual conference -- where you can learn a lot about tube and IV feeding and meet other families facing similar challenges. Preliminary details are posted now, but keep checking for updates at http://www.oley.org/2009_Annual_Conference.html
There are travel scholarships for first time attendees.
If you have any questions or would like to be introduced to another family, feel free to contact me.
Warm regards,
Roslyn Dahl
Oley Foundation Staff Member
dahlr@mail.amc.edu
(800) 776-OLEY
Hi Bryan- I just found your blog somehow on Facebook and read all about Jill's amazing little life. Wow! I'm so glad I got to come in on the story when she's done with the surgery and going home! I'll pray for her continued health, and praise God that she is okay. Both of your daughters are so beautiful! Keidi (Akeida, from Cal Poly)
I leave for Romania on march 9 so if timing works out I would love to see you guys if all goes well with the trip to CA! I can come to San Jose and visit. Talk with you guys soon and so happy to hear that all is going better for Jill!
Yay, Jilly-Jill!
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