A quick update. Jill started eating again a couple of days ago. As predicted, she still has an aversion to her bottle. She associates it with pain from acid reflux even though she shouldn't have the pain anymore. So Judy has been trying to bottle feed her when she's asleep. Since she isn't getting much that way, Jill has had several feedings through her new feeding tube. So far so good. Judy has noticed a significant increase in the number of wet diapers. Before we used to be able to go several hours without changing a wet diaper. No longer.
For those of you who may have been "praying for poop" as requested, please stop! Her bowels are working overtime.
Sorry for the graphic update.
Jill is definitely looking happier and more active. We're still not sure when Jill and Judy will head home. Friday may be possible, but sometime this weekend is more likely.
In November 2007, our unborn daughter was found to have a condition called Congenital Diaphragmatic Hernia (CDH), which occurs in 1 out of every 2,500 pregnancies. Basically, our daughter’s diaphragm had a hole in it that had allowed her stomach, liver, and some intestines to pass into the upper regions of her chest cavity. Her chest was too overcrowded to allow her lungs to fully develop. She was given slim odds to survive and worse odds to thrive.
Our daughter, Jillian Olivia, was born in the Spring of 2008. Since her birth, Jill had two surgeries during her first year and has since thrived.
We started this site to chronicle our experiences throughout this journey and to keep our family members and friends up-to-date on Jill's condition. Now we use this site to update others on what's going on in our lives.
2 comments:
yay poop. thanks for the updates.
Hooray for poo!
Post a Comment