Jill's fever last night of 103 degrees subsided just after midnight. The new antibiotics that she was put on last night appeared to have cleared up a mild staph infection in her blood. Her stomach also appears to be digesting saliva and other stomach juices for the first time since her surgery. So the plan is to starting feeding her tomorrow. If all goes well, she could be home as soon as Thursday!
Jill finally smiled for us today. We had really been missing her smiles as she is generally a happy child. Not seeing her smile for nearly a week was difficult.
Please pray that the feeding goes well. We hear that once a baby develops an aversion to eating, drinking from a bottle in Jill's case, pain can still be associated with the act of eating even after surgery has been performed to eliminate that pain. If all goes well, Jill could have the feeding tube removed in as little as two months. Some children, however, can be left on a feeding tube for years. We're praying that Jill will get all of the nutrition she needs from eating solids and drinking from the bottle without any supplemental tube feedings.
In November 2007, our unborn daughter was found to have a condition called Congenital Diaphragmatic Hernia (CDH), which occurs in 1 out of every 2,500 pregnancies. Basically, our daughter’s diaphragm had a hole in it that had allowed her stomach, liver, and some intestines to pass into the upper regions of her chest cavity. Her chest was too overcrowded to allow her lungs to fully develop. She was given slim odds to survive and worse odds to thrive.
Our daughter, Jillian Olivia, was born in the Spring of 2008. Since her birth, Jill had two surgeries during her first year and has since thrived.
We started this site to chronicle our experiences throughout this journey and to keep our family members and friends up-to-date on Jill's condition. Now we use this site to update others on what's going on in our lives.
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